Monday, July 21, 2008

My latest procedure went well...

Since it has been over 2 months since my last entry I am going to summarize what has been going on in my cancer world.

- My CEA has risen to an all time high of 187.

- My Platelets have continued to remain too low for me to do any regular chemo, or any of the chemo I was on the past two years.

- A week ago Saturday I started to take an oral form of chemo, called Xeloda.  It is a continuous form of chemo in that I am taking the pills morning and night for 2 weeks and then 1 week off.  So far I do not feel any side effects of this drug, but because of my low platelets I am only on half dosage.

- On the May long weekend, I accidently pulled out my feeding tube.  I have been trying to eat enough so I don’t lose any weight.   Unfortunately that has not been the case and I am now booked to have the tube reinserted into my small intestine on August 8th.

- Part of the reason that I was unable to east enough to gain weight is that I developed ascites (http://en.wikipedia.org/wiki/ascites), which is an accumulation of fluid in the peritoneal cavity (abdominal area).  The ascites plus the lack of my digestive system was making things very uncomfortable for me.  On Friday I had a ‘pigtail’ catheter inserted by my left hip to drain the fluid.   To date I have drained approx. 6 litres (6 kgs) and now I don’t look like I am pregnant anymore!  I still have pain from the procedure but I do have some relief from the discomfort of carrying the extra fluid. 

I think that is it for the cancer update.   Since I have been dealing with a lot of discomfort/fatigue I have not been doing too much.   Hopefully things will dry up and I can start enjoying the outdoors again.

Thank you to all of you that continue to see how I am doing.  Your prayers and well wishes are greatly appreciated.

12 Comments:

At July 21, 2008 at 2:49 p.m. , Anonymous Anonymous said...

Hi Wendy
I'm sad to hear of your recent difficulties but hey, I'm pulling for you; we're all in this together! I'm going for a scan tomorrow and will restart chemo again, too. I'm wishing the very best for you Wendy, and to your readers as well.
Here's to a wonderful summer!
Wendy2

 
At July 21, 2008 at 6:01 p.m. , Blogger donna said...

Hi Wendy,

I am sorry to hear of the discomfort and set backs. I too, hope that you will feel well enough soon to get out and enjoy some of this summer weather.

You are always in my thoughts.
Donna

 
At July 21, 2008 at 9:35 p.m. , Anonymous Anonymous said...

Wendy, so glad to see your post. i continue to send positive thoughts your way... a long way away. enjoy the summer in your beautiful part of the world. carol

 
At July 22, 2008 at 11:20 a.m. , Anonymous Anonymous said...

Dear Wendy,
As always, it is good to hear from you again. Keep up your strength and try to enjoy the summer as best as you can. We only have today. Best wishes to you.
Christine

 
At July 22, 2008 at 11:55 a.m. , Anonymous Heather & Tom said...

Hi Wendy
I was glad to get your update but was sorry to read of your difficulties. I do hope that you will be getting some well deserved relief and maybe we can hook up. It has been a busy summer so far but we would love if you could come and enjoy the backyard/pool with us.
We think of you all the time and hope that you doing well.
Take care
Talk to you soon.

Heather & Tom

 
At August 11, 2008 at 2:47 p.m. , Anonymous Anonymous said...

Hi Wendy
Thanks for the beautiful gift you sent for the birth of our daughter Elise
Please tell your Mom she is a wonderful knitter and Elise loves the blanket
It is a testament to how special of a person you are that through this trying period you are kind enough to think of others
Your an example of the way the world should be
I keep you in my prayers
Keep the faith
Greg (Samira, Lorelle, Elise)

 
At August 29, 2008 at 11:03 a.m. , Anonymous Anonymous said...

How's it going Wendy? Hope this finds you relaxing and getting stronger again. I think of you often; you're in my prayers.
Best wishes, warmest regards,
Wendy

 
At August 29, 2008 at 9:53 p.m. , Anonymous Anonymous said...

Wendy, I think of you often. My husband has just had RFA. Is that a possibility for you? Hope you are recovering and finding a little joy each day. Carol

 
At September 13, 2008 at 8:25 a.m. , Anonymous Anonymous said...

Hi Wendy, I have tried to post before but I seem to be doing something wrong. Hope all is well with you and your getting better with each day.Know that you are not alone as we are all thinking and praying for you. Hope to hear from you soon. Till next time all my best. BEV

 
At September 13, 2008 at 12:49 p.m. , Anonymous Ray said...

Hi Wendy,

I've been thinking about you but just found this site today. It really sounds like you've been through the mill.

You've been and will continue to be in my thoughts and prayers. It's hard to believe the conference in Baltimore was a year ago.

Ray

 
At April 15, 2011 at 9:59 p.m. , Anonymous sarah said...

miss you aunt wendy. i love you. give beka some loving for me :)

 
At October 19, 2015 at 1:28 p.m. , Blogger Unknown said...

When did she pass? I just stumbled into this site after seeing a post she made on a cancer forum back in 2007. My mother has been told she has less than a year... I am so devastated, I can't sleep. Just keep surfing the web trying to find a cure that doesn't seem to exist. I got a sinking feeling when I saw there was no update since 2008, when I got to your post Sarah I broke down. I know you'll never read this, your post was from 2011...it's all so very depressing. -john

 

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